We headed out to the beach again this evening. What an amazing day and night. Mason is convinced that summer is going to last a long time because winter lasted so long. Ahh, the naïveté of youth. I haven't had the heart to tell him the truth. He'll find out soon enough.
Incognito
The water was a lot colder today, so the boys did a lot of running in and out of the water.
Look at that beautiful taping job on Maddox's nose. I take full credit for that job. ;) he finally doesn't look like he was badly wounded.
You can sort of see the green stripes on his face here because I didn't get all the protective covering off. Those strips will need to be replaced soon, because they are already starting to come off. But look at his nose!
On the way home from the beach Maddox asked "Can I have something to eat?". Holy cow. That is not something we hear often, especially since he started the feeding tube. After eating fruit snacks, he asked if he could eat something else. I almost fell over. He ate 162 calories just on the way home. Today he ate a total of 378 calories. Mostly garbage calories, but calories nonetheless. Once he isn't on the feeding tube for 24 hours, we'll start focusing on healthy eating. Today he ate a total of 378 calories.
One of the nice things about the feeding tube, is that I don't have to pack a whole refrigerator whenever we go anywhere. And I'm not stressing so much about what he eats and how much he eats. Yes, I'm counting every calorie, but I know he is getting adequate nutrition and more calories than what he was eating.
Starting tomorrow we have a very busy week. Tomorrow Mason has his follow up from his eardrum patch. That includes a hearing test. I am excited to see how his hearing has improved. However, I will be entertaining Maddox for about 2 hours. My brother Derek is coming home from California for my brother Dominic's wedding. So excited to see him!
Wed morning is Maddox's first check up since receiving the feeding tube. I'm excited to see what the doctor's scale says. I am going to ask if we can cancel the urology appt until we are done with the feeding tube. On Wed we will also start increasing how much formula he gets an hour to start transitioning him to the 15 hour feed, instead of 24 hours. I'm very excited about that! We afternoon, the boys are getting their haircut
Thursday morning Mason starts his homeschool class at Hartley and Thursday afternoon we head up the shore for Dominic's wedding rehearsal.
And we'll fit 1-2 nurse visits in as well.
2 comments:
Jolee - I love reading all of this. You guys are amazing and I love seeing how smoothly you've made this transition...and in such a short time!!! It is so exciting to hear he's gaining weight already. love it. :) good job, mama. (and papa.) and buddy! and brother!
Thanks Steph. The only reason we have transitioned so well, is because Maddox has done so well. If our 3 year old can deal with a tube coming out of nose,then we better be able to ;). Most importantly God has had his hand in this. Maddox has adjusted way to smoothly to attribute it to anything else.
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