Talk about a hospital visit from h---. Tonight was c-r-a-z-y.
We were discharged at 3:00 pm, ran home, packed and hit the road at 4:15. Craig stayed home to work, and the boys and I headed out of town.
Talk about sheer exhaustion. We arrived at Children's around 7:00 pm, unloaded the van, carried our bags in, picked up my badge and headed to the 6th floor (per our instructions), checked in only to hear "I don't see you in the system, let me call someone. Maddox then needed to poop, Mason needed to pee. We returned to the desk and I spelled our last name 8 times, Maddox had an accident, got him cleaned up, returned to the desk again with no answers. Then we settled in the family room, Mason with the iPad and Maddox with the large screen tv (have I ever mentioned how thankful I am to live in a digital age?).
After over an hour wait, they discovered we were supposed to be on the 5th floor. Once we were in our room, my cell phone rang. A woman said "is this Jolee? I am so and so, the nurse at Children's, where are you?". I replied, "oh, we have a room now, room 5132, we were on the wrong floor". There was a pause. "which Children's hospital are you at?"
It turns out our nurse accidentally set things up with a different hospital, but the doctor set things up with the hospital we were at (which was the right one).
While sitting around waiting for answers, I looked through our paperwork and it turns out the radiologist at the first hospital we were at diagnosed Maddox with early pneumonia. That was news to us. He was being treated with a strong antibiotic, but no one came out and said he had pneumonia. (an x ray here determined it is not pneumonia).
Maddox needed a new IV put in and a neb treatment, which is so traumatic for him and for me to watch. During the IV procedure, the fabulous nurse we had last time we were here walked around with Mason. She even took him into the "teen room", even though she had be explicitly told not to.
Then to top it off, our nurse gave me some bottom cleaning foam and super soft wipes for poor Maddox's bottom (he has the runs something fierce). I went to clean him up, he didn't want to, but he stuck his little bum in the air for me to take care of. The nurse exclaimed, in a horrified voice, "OH!! That is for when he goes to the bathroom! You don't clean him now".
The boys have been absolutely incredible though. They are amazing. Mason is pretty congested and I feel horrible about that. Hopefully he feels better quick. Maddox is doing well. A bit traumatized, but he still has his spunk and wit.
I am off to bed now.
3 comments:
What in the world is going on?!? How frustrating. More prayers for you all, and the doctors - that they will find a treatment that works for Maddox. ♥
yeah. Turns out he does not have pneumonia though. they did another x ray, so that is good. They are also discontinuing the antibiotic, so that should help with the diarrhea. We slept as good as we could in a hospital room. we will be staying at least a couple more days to see if we can get his feeds back up to the rate it should be.
Just sent you and email. We're coming to the cities tomorrow and we want to come and pray for you guys. Give me a call!! Love to you all.
Sarah
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